We're Not Going Home

Kirstenmumof3 wrote: I can't stop crying! The GI team finally came and saw Spencer today. They definately think it's Graft-Versus Host Desease and they are going to do a biopsy of his stomach. This means that we need to stay in Toronto, but they don't know when they can do the procedure, they can't tell me when we can go home. All they said is to cancel the plane tickets.

I'm tired of being jerked around. I'm just so fed up with Spencers doctor right now. He's been saying this for the last week, that it might be Graft-Versus Host desease, that we should do a biopsy. And they are just now being called in. I'm so upset, so angry.

I won't be home for Mothers Day!

ashtonsmama replied: NOOOOOOOOOO! I'm so sorry Kirsten!

How frustrating that must be! Well-please know that you WILL get out of there so so soon, and you're in my heart and prayers...you're a mighty strong woman and such a wonderful mom to him, remind yourself of that. We love you hun, and we're praying.

1lilpeanut2love replied: OMG! I am so sorry! I hope that the docs get down to this once and for all! I am so sorry that you won't be going home! I feel so bad for you all! Good luck with the biopsy!!

1lilpeanut2love replied: I am continuing to pray for you and your family!!

MyBrownEyedBoy replied: Aw, dang it!! I so wish you could be home for Mommy Day. I would make it a point to ask your doc point blank why the GI team wasn't brought in for consult until now. You deserve answers. Don't be afraid to take it up with the hospital's higher ups. I pray that you will get answers soon and that you'll be home soon after that.

AlexsPajamaMama replied: Lots of big hugs and many prayers. Thats just not fair to keep jerking you around like they are.

kayla's mama replied: I'm so sorry Kristen that he won't be able to go home, espeically for mother's day. Hope the biopsy turns out to be neg. and he'll be able to get home soon. Still sending many prayers your way for your, Spencer, and the rest of your family

holley79 replied: I'm so sorry for both of you.

kimberley replied: i'm sorry

~Roo'sMama~ replied: Oh I'm so sorry!

NEWMOM05 replied: Kirsten, I will always keep you in my prayers and that the dr's once and for all start being straight with you and doing what they are supposed to do.

gr33n3y3z replied:
I agree

Kirstenmumof3 replied: Thanks everyone! I'm headed to the hospital. DH is planning to talk to the doctors today and find out why nothing was done until now! I'm still very upset, I want to cry. I'm so angry!

na81 replied: I am so sorry! I hope you get some answers soon, your doctor shouldn't be jerking you around like that!! Many prayers and PT's!!

Kaitlin'smom replied: I am so sorry. I hope you get answers today.

Sarah&Mackenzie replied: I am so sorry!

3xsthefun replied: I'm so sorry.

MamaJAM replied:

b&bsmom replied: They should not give you a false hope of going home if they know there is a good chance you won't be. I am so sorry for you and Spencer. I hope everything turns out ok. You and your family are still in my thoughts and prayers. I hope you get answers soon.

DansMom replied: Oh, Kirsten---I'm so sorry to hear this

I was just reading on the web that patients who develop graft-vs.-host disease are less likely to have a recurrence of the leukemia that was being treated. Just looking for a silver lining. It seems like there is no end to complications for little Spencer. You both really deserve a break.

BAC'sMom replied: I am sorry to hear that.

My2Beauties replied: I am so sorry Kirsten and I am so sorry for Spencer! My continued P&PT's with you and Spencer and this is just one kickback, his day to come home will come soon Kirsten! I know it's hard, just be positive! Bless your heart

A&A'smommy replied: I'm sorry dear I hope poor little spencer gets better soon!!

mysweetpeasWil&Wes replied: I'm so sorry...I hope you can put all this past you soon. Please have a good Mother's Day regardless. You deserve it!