Update on my nephew - Peyton

mckayleesmom wrote: He is doing good...He is still very much baby like, but he now has a little bit of muscle strength in his neck. He is also eating baby food now. He turns 2 in May. A while back they had a custom made carseat built for him...since he is so big and doesn't have neck muscles very much, they needed him to still be rear facing. My sister found a company that makes them and they make them based on the childs measurments and body type. I think it was like 5 thousand dollars. They just got him his first wheelchair type stroller deal...it was 11,000 , but they had help with that...they enrolled him in a program that pays for the stuff he needs until he is 18. They also got him a bathtub thing so he can sit up and is soon going to be fitted for braces for his legs. Im not really sure what the braces do, since he doesn't walk. My guess is they help his legs grow at the right angles since thier is no muscles built in them. Other then that,,,he is doing good. Still going to therapy. He had an EKG and a MRI done a while back....I think they are still waiting for the results of 1 of them and one of them came back normal.

Insanemomof3 replied: Sounds like he is doing well! I am glad that they are getting the help with stuff that they need. That is awesome!

mummy2girls replied: (((HUGS)))) These kids are my big reason why i have a passion to work with them! Its something about them that gives me the strength and of course be very grateful for what i have:)

A&A'smommy replied: My P&PT"s for them, I'm glad they are getting help with all the stuff he needs!!!

MyBrownEyedBoy replied: Hugs and prayers to Payton and his family. I am glad they are getting the help they need.

redchief replied: It takes a special family to have the strength and patience to care for a special needs child. Kudos to your family for all of it's hard work and untiring search for ways to improve Peyton's life.

My3LilMonkeys replied: Glad to hear he is doing well and they are able to get assistance with those things.

C&K*s Mommie replied: I am so happy to hear that they are getting assistance with the financial side of this, and I am even happier that they are staying the course to ensure he has a great life!

3xsthefun replied: I'm glad to hear he is doing good, and they are getting help they need.

amymom replied: Thanks for the update!

CAMSMOM1 replied: I think I missed the original post about Peyton, what medical condition does he have? Poor thing. But it sounds like he has the best parents, that love & support him. I hope the carseat, bathtub & braces work out for him. I'm sure it'll really help him to become more independant & give him the support he needs. That's great they are getting assistance that covers that, I'm sure it's a huge burden off their shoulders. I would love to see a picture of your nephew, he sounds like a sweetheart. I'm glad he is doing better.

mckayleesmom replied:
They are not exactly sure what is wrong with him....He will be 2 in May and he has the capabilities of a 4 or 5 month old....actually less. They are pretty sure is some form of retardation (ugh..I hate that word), but not exactly what kind.

CAMSMOM1 replied:

I'm so sorry to hear that. I can imagine how difficult that must be for his parents. Not knowing, can almost be worse than knowing what's going on. I pray they will find the answers to this, and that the new equipment can help him along in this process.

jacobsmama replied: I'm glad they are getting assitance but that would be so hard to "not know" what is wrong with your child and how to help them ya know?