Today

Kirstenmumof3 wrote: If just for a moment things would just be okay. If I could just leave his room and know that it will get better. If only for a moment I could have some faith in god. If only for a moment I would wish that I could take everything away!

I'm scared. I'm feeling very alone. They are taking the Central Line out today and then he will have IV's in both of his hands for 48 hours. Then after that the will put the equavalent of a Central Line in, but it will been his arm.

My2Beauties replied: Oh hon, I just responded to your other post as well, I am so sorry. Just know that things will be ok, please keep the faith and know that he will be ok. We are all here for you, please keep us updated and let us know what is going on. Spencer is a strong little guy, everything will be ok hon.

mckayleesmom replied:

C&K*s Mommie replied: I wish there was some way to take the place of you or him, I wish.... Just know that we are here to listen all the time.

MommyToAshley replied: Oh Kirsten, I am in tears right now. It just breaks my heart and I am so sorry that you and Spencer have to go through all of this. I said it before, but I can't even imagine being in your shoes.

Please feel free to vent and cry... I am glad you have a place you can come to where so many people care about you and Spencer. Just know that you are not alone. We are all thinking of and praying for Spencer. He is going to be ok. He is going to be Ok... I just know it.

kimberley replied: my heart is breaking for you honey. i wish i could take all the pain away for both of you. i will pray harder for your little boy and for you.

MamaJAM replied: I'm so sorry. I continue to pray for Spencer and your entire family.

MomToJade&Jordan replied: Oh Kirsten. I wish that there was something I could do or so to take this all away. You and Spencer will continue to be in my thoughts and prayers.

~Roo'sMama~ replied: I'm so sorry Kirsten I can't even beging to imagine how hard this is. Don't give up hope everything will be ok! I'm still praying for you and Spencer.

redchief replied: I understand how helpless and powerless you must feel, but please don't lose faith! Your son has been doing very well and I just know he'll get over these hurdles. You have our continued prayers!

kayla's mama replied: Your little man is strong, he'll be OK

jcc64 replied: You're not alone, hon, you're really not. I think I understand what you're saying, though. When my dad was sick, I recall both of my parents saying how jealous they felt of other people who were able to lead "normal" lives, whose every moment wasn't consumed with drs, treatments, etc. You guys are in the trenches right now, Kirstin, this is the intense part of his recovery. When things get too overwhelming, just put one foot in front of the other and face down one small part at a time. Hopefully, he'll turn a corner and begin to regain his strength. In the meantime, I hope the hospital is offering you some sort of counselling or support groups where you can connect with other families that have gone or are going through this and can support you in a specific, btdt way.
Big big hugs to you guys. It's ok to fall apart Kirstin, this is alot for anyone to deal with, and we're here to help you get back up again.

amynicole21 replied:

Chiflata2003 replied:

MyBrownEyedBoy replied: My father gave me some advice when I was feeling overwhelmed about Logan's surgery. He told me to do it like I would eat and elephant. One bite at a time. It worked for me, I simply focused on it bit by bit. The first day, it was get through surgery, then get off the ventilator, then remove tubes one by one. If I looked at the big picture, I got overwhelmed, but when I focused on one thing at a time, like for you focus on the removing of the central line. Then focus on what to eat for a snack, just getting through to bed time. You can do it, and we are here to listen when you feel like you're losing it. Hugs to you, Kirsten, you are amazingly strong.

CAMSMOM1 replied: Kirstin, I know during these times it feels like things will never get better. And time seems to stand still. But know that your faith & love will carry you through. I think of that poem, Footprints, and during your hardest times you feel like you are alone...just know that during this time, God is carrying you & Spencer through. Cast all your cares to him, and he will give you rest.
And sometimes things get worse before they get better, and I know in my heart he is on his way to a full recovery. Just take it one day at a time.

Kirstenmumof3 replied: I'm sorry to worry all of you. It's really that I have no one else to talk too. There is a support group on the unit, on Wednesdays but so far everytime I've gone, the staff that facilitates it is not there. I'm so overwhelmed and you are all right I need to look at the small steps, we've gotten through the chemo, we've gotten through the transplant, the fever has broke. We'll get through the infections (there are 2 now) in his blood and the Central Line removal. He will be okay!

A&A'smommy replied: Just keep praying everything will be alright it just takes time and patience... I can't imagine how hard this is for you to see you baby like that.. I'm terribly sorry I wish I could do or say more for you!!!

NEWMOM05 replied: Kirsten, You have so many friends rooting for you and Spencer. You will get through this One Day At A Time. It's hard to trust God when everything is so crummy right now, but he is right there with you. In the bible it says "Jesus wept. "I love that verse, because it means he feels our pain and sorrows. Even when you don't feel it, he has his arm around you and is trying to comfort you. Lean on him and all of us. I haven't really gotten to know you, but already your family has found a way into my heart.




Peggy

BAC'sMom replied:

redchief replied:
That's the spirit Kirsten. We're here for you!

gr33n3y3z replied: Kirsten hang in there hon this is the hard part

Edward's Mommy replied: I'm so so sorry!! I wish I could make all the pain your both feel disappear. I wish I could tell you all the things that will make you feel better. All I can say is, he's made it this far....there is no reason to think he won't make it through completely. He will be ok, and you will be ok! And you're not alone. You have us when you need to talk. Keep believing that God with take care of Spencer and that he will get through this! I continue my praying for you and your little boy and the rest of your family.

fashionmumofboys replied:

Maddie&EthansMom replied: You poor thing. If wishes were dreams I'd make it all better for you. Hang in there.

You are so incredibly strong...you AMAZE ME!!!!

mummy2girls replied: (((HUGS))))) Oh hun i am so sorry! I wish i could be there... i do have this feeling he will pull through! You all are in my prayers!!!!!!!!!

mysweetpeasWil&Wes replied:

jem0622 replied: I know this is so draining. You never ever want to see your kids go through such things. Just put your faith in God and let him carry you and Spencer through this storm. They are doing the very best that they can for him. Is there a support group or counseling available to you? I hope so and I hope you are taking advantage of it. Lots of hugs, prayers, and strength to you all.

My3LilMonkeys replied:

~~*Missi*~~ replied: i am so sorry this is all happening to your child and your family. I hope things get better your all in my toughts and prayers.

keep the faith in times like this its hard but he's there I promise he's there!

Hugs and love

CantWait replied: