They Cancelled the Surgery - And I walked out....

Kirstenmumof3 wrote: You know they really shoud not play with peoples emotions like this. They poke Spencer and prode him and have him raise his arm and all the while he is screaming in pain. They go through and tell me everything that could happen during the surgery, all the complications, everything. Then they tell me what could happen if he doesn't have the surgery and what would happen if they wait too long. And then they go ahead and cancel the surgery. They want to wait and see how the infection progresses or doesn't progress. They have his arm elevated and ice packs all around him. So this means more poking and proding for the rest of the evening. Hasn't he been through enough? When will he just get a break? My god he's only a little boy!

I'm so disgusted with the surgeons and my DH (for other reasons) right now. I needed to leave, so I walked out of the hospital. DH leaves for the airport at around 7:00 and I don't even want to say good-bye to him. As for the doctors I'm about ready to tell them all to go to H*LL!

1lilpeanut2love replied: OMG!! I am so sorry for what you are going through. I can't even imagine. Your poor little boy. I was almost in tears reading that. I feel SO bad for your boy. I hope things start looking up for him. My heart and condolences are again with you and your family. Your son is such a strong boy and so are you. Those d!!! docs need to get their s*** straight. I hope they get to the bottom of all this soon. You all have been through enough.

CAMSMOM1 replied: Oh Kirstin, That is so sad. You're little boy has been through so much. I can't understand why they would put you through that, just to cancel on you. What I really dont understand is why are they going to wait to see if the infection gets worse? Isn't this surgery suppossed to help fix that?

I can totally understand why you are feeling frustrated. You are being pushed, and pushed and we all have a breaking point. I know it's hard having to be the strong one all the time. It's ok to cry. It's ok to be mad. It's ok to walk out of the hospital and take a break.

kimberley replied: oh hon, i am so sorry they are doing this! how very frustrating! i wish i could take both your pain away .

mckayleesmom replied: 's

gr33n3y3z replied: I'm so sorry they are doing this to you both so sad

kayla's mama replied: So sorry that the doc seem to have their heads up their _ _ _! I hate it when the doc want to play the wait and see game
You guys have been through enough already I hope his arm gets better soon.

holley79 replied: Oh sweetie I am so sorry. I hope they get it together soon and help Spencer. for you both.

MamaJAM replied:

luvmykids replied: I wish there was somthing I could do

3xsthefun replied: I'm so sorry they are putting you all through that.

jacobsmama replied: I'm so sorry that spencer has to go through all this... I'm glad that you got mad and walked out because YOU NEED A BREAK TOO Please know that it is ok to cry and not be strong all the time. You are a great mom and dealing with idiot doctors doesn't help matters at all

MommyToAshley replied: Oh Kirsten, I am so sorry. Poor Spencer.

I completely understand why you are so frustrated with the docs. You only want Spencer to get well, and they can't seem to make up their minds what the best course of action is. How's Spencer doing today?

How are you doing? I can only imagine how stressful all of this must be. Hang in there and just try to take it one day at a time.

Many continued prayers.

redchief replied: Kirsten, I'm so sorry you feel so alone right now! I pray that the decisions made are right, and pray that you get some long deserved peace.

My3LilMonkeys replied:

PrairieMom replied:

MM'sMama replied: Poor little guy. P&PTs

Edward's Mommy replied: I am so so so sorry! Why did they cancel the surgery? Don't they think he needs it? UGGG! Sometimes doctors are more harm than not. My prayers will continue to be with you until this is done and after. I'm praying hard for you and your little boy! You're both so strong!

Insanemomof3 replied:

Kirstenmumof3 replied: I only have a few minutes, but wanted to Thank You all again for your support! I've called the Patients Representatives today and hopefully they will get back to me. I'm not going to be so naive and passive anymore. I plan to write down everything, times, names, dates of everything. And I'm going to be more assertive when it comes to asking questions and not stopping until I get the right answers!

jcc64 replied: That's a very good idea, Kirstin. You need advocates that are familiar with the "system"- the more informed and assertive you are, the more respectful and attentive the care tends to be. I know I've asked this before- are you involved with any sort of parents' support group? I've found that parents in the same boat are often the very best resource for information, guidance, and just general support. Is there a social worker affiliated with the hospital, or even ask at Ronald McDonald house?
In the meantime, just love your little guy and know that we are all pulling for you, as always.

C&K*s Mommie replied: That is great idea. I hope you get the answers, when they realize that you are not the one to sit back and watch.

Hugs galore for Spencer, and youself. Many prayers, too.

fashionmumofboys replied:

Sorry you are going through this. I hope you get the much needed answers and peace.

Big to Spencer and to momma.

Kirstenmumof3 replied:
There is a "Support Group" on the Unit every Wednesday and they bring up coffee and donuts, but all the time I've been here the facilatator never shows up. So it's just us moms sitting around talking. As for the Social Worker, we don't exactly get along. I don't trust her and she has already pre-judged me because of my previous mental illness. I am seeing a psychiatrist once a week, but only for 8 weeks (it was a crisis referal) and if she feels that I need more therapy they would refer me to the psychiatric hospital.

My2Beauties replied: I am so sorry hon!

ions_momma replied: Oh honey, I am so sorry to hear that! I cant even begin to imagine what you are going through! I will continue to pray for Spencer, you and the rest of your family.