Tele-Conference, Update on Spencer - Upsetting, Some May not Want to Read

Kirstenmumof3 wrote: It's bad, it's worse than bad! It's every parents worst nightware! They started by telling us to have the best Christmas that we could possibly have, because this may be Spencers last! The odds are against us, but if we don't do the transplant, the odds are worse. There is a 40-60% chance that Spencer won't make it through the transplant. If he makes it past the 3 month mark, there is a chance that he will get severe graft-versus-host desease. Only 2-3 out of 10 children survive a second transplant and there is only one case at Sick Kids or a patient at Spencers stage got graft-versus-host desease and made it.

The treatment plan for this transplant is to use both chemo therapy and radiation therapy. He would have 4 days of intense chemo and radiation twice a day for 5 days. The side affects from the radiation are problems entering puberty, stunting of growth and he could become sterile. There are medications that they can use to help with puberty and the growth stunt.

We will all be heading to Toronto on January 5. Claudia will immediately start the GCSF drug (used to stimulate cell growth). On Janaury 8, Claudia will be admitted to the hospital to have the femoral line insertion. Stem Cell harvest will begin on the January 10 and 11. She will be discharged January 12 and then Mark and the girls will head home on the 14. Spencer will be admitted to the hospital on Janury 15 to start treatment and then his transplant. He will be need to be kept in isolation for long time. And this will be very difficult!

moped replied: I am so sorry!

mom2my2cuties replied: OMG Kirsten!! I am so sorry I will say some additional prayers for Spencer! Gosh, I am so sorry this is happening to him.

TANNER'S MOM replied: I am very sorry.. your family is in my thoughts and prayers like always. Don't forget the miracle.. it can always happen when we least expect it. Much love from my family to yours.

I am sry again.

Boo&BugsMom replied: Oh my, I am so sorry! Words can't express how sad I am for your whole family.

MyBrownEyedBoy replied: OMG, Kirsten, I am at a loss for words. I am so sorry that you had to get that news. And even sorrier that it was given over the phone. Here's to a wonderful Christmas, but I'll be stepping up my prayers in the New Year. Hugs and Prayers to you and your family.

PrairieMom replied: I am so sorry! I thought things were going better. My heart is just breaking for you. I will say more prayers for you.

punkeemunkee'smom replied: Oh Kristen I am so sorry! We will be praying for a miracle! I am so sorry!

gr33n3y3z replied: I dont know what to say but only this
heavy duty prayers coming your way and for Spencer and family
Hang in there Spencer and give this your best fight ever

Calimama replied: I'm so sorry. Remember to never give up.. miracles happen when you dont think they are possible.

CantWait replied: I'm so sorry Kirsten. Many many prayers for a miracle.

Our Lil' Family replied: I am so sorry. I am still praying for all of you. Just remember that God is capable of miracles and has been known to perform very very many.

Donna027 replied: I am so sorry I will pray for you and your family

skinkybaby replied: I am so sorry. I'll be praying for you.

cameragirl21 replied: i am so sorry to hear that, Kirsten.

boyohboyohboy replied: Kirstin do hang in there, miricles do happen, and this is the time of year for them. I will pray so hard for spencer and your family.
I cant express to you how sorry I am that you got this news.

Hillbilly Housewife replied: Oh Kirsten...I'm so sorry to hear that. You've already been through so much... let's pray that God is done with the worst of it and it's rainbows and sunshine for your family from here on out....

luvbug00 replied:

amymom replied: Oh My!! Kirsten, many prayers are being said for Spencer and your entire family. I will be continuing to keep you in our thoughts and prayers. And as others have said, we all hope for a miracle for you guys.

My3LilMonkeys replied:

sparkys2boys replied: I am so sorry, but as others have said hang in there and pray, it is a time of miracles and blessings. Make each moment that you have special and stay strong. Prayers are with you and your family.

Kaitlin'smom replied: I wont express my first thought

I am sooo sorry and will be thinking of him ALOT

MommyToAshley replied: Kirsten, I don't know what to say. I can't even begin to imagine what you must be feeling. My heart is aching for you now, and I wish I could be there in person. I want to say the right thing, but I don't even know if there is a right thing that can be said. But, I will tell you what my gut says, and that is... fight. Spencer is a fighter, he has proven that over and over again. You have to believe Spencer will be in the 50% that make it through the surgery. I have to belive that. We have to believe that he will not get the graft-versus-host desease and if he does, then he will be one of the 2 or 3 that will be just fine. You can't give up hope. Spencer can't give up. Just like so many others that love and care for Spencer, I will pray for Spencer like I have never prayed before.

Kirstenmumof3 replied: Thank You everyone! You have all been so supportive, so kind, so generous. I thought that things were getting better, I actually started to have faith in GOD! I honestly thought that he was going to make it through this, but now, now I don't know!

I keep thinking that this is all a dream and that I'm going to wake up and everything will be okay!! I left the hospital today, I just couldn't stay. The Psychiatrist wants to see me on Thursday, as I'm not taking this very well. She said if there was anything that she could do to help, she would do it. I also see my Psychologist on Monday. I'm just so numb right now!

~Roo'sMama~ replied: Oh Kirsten! I'm so sorry. I'm praying for you still.

booey2 replied: Kirsten, I am beyond words. I just told Matthew that Spencer was sick again and he said he would like to pray with me so that God will hear more prayers for you all.

Terri and the boys

Cece00 replied: I am very sorry to hear that. I am going to pray for your family.

kimberley replied: i am so sorry Kirsten. my p&pt are with you.

3xsthefun replied: I'm so sorry.

Maddie&EthansMom replied: Kirsten please stay strong and don't give up hope. The fight isn't over yet.

You guys are in my prayers.

msoulz replied: Wish I had anything to say or do that would make it all better.

1lilpeanut2love replied: OMG! I am SO, SO, SO very sorry. I can't imagine what you are going through. I just don't know what to say. Stay strong. Continued prayers and pt's coming Spencer's way. I hope God works a miracle. I am sorry again. We are here for you when ever you need someone to talk to or a shoulder to lean on!

luvmykids replied: I'm just speechless. Continued prayers for strength and some level of peace for your family.

mummy2girls replied: Oh No Kirsten! I am so sorry! I wish I could do more! if i could i would jump on a plane and be there! God has reasons for what he does at times we wonder what was he thinking but he knows ... Im not sure what to say at this point! many hugs headign your way and of course heavy duty prayers heading your way! I will pray and not stop ubntil i hear he is cured!!!!!!!!!

mysweetpeasWil&Wes replied: I can't even imagine what you're going through...I'm so very very sorry. Many P&PTs.

C&K*s Mommie replied: Many more P&PT's for the fight to continue in Spencer.

amynicole21 replied: Oh no, Kirsten I'm so sorry. Your family is firmly in my thoughts.

jem0622 replied: Many many prayers for Spencer. I surely would be enjoying every minute of the day. I do hope that the doctor's are wrong and that he will fight this all the way!

coasterqueen replied: Oh Kirsten, I am so so sorry. I wish there were some magical words I could type here to make all this go away for you. I do believe in miracles and I pray that your family will receive the biggest one of all and soon.

lisar replied: I am so sorry. I dont know what to say.. I just wanna cry.

lesliesmom replied: Kirsten, I am so sorry. I just don't know what to say. I (and my family and Church) will be praying for Spencer and your entire family.

BtB2006 replied: I am brand new here and just reading through all of this and wanted to let you know that I will be praying (as will my family). Please keep us informed as to what's happening and let us know how things are!

God goes behind and before you and He'll keep you strong.

*hugs*

jcc64 replied: I've been away Kirstin- I am just reading this for the first time. I really don't know what I can possibly say to you. You are in a scary scary place right now, and I wish you as much strength as you need to stay in this fight with Spencer. There is always hope- and that's what you will need to sustain you through this very difficult period. I am with you in spirit, as we all are.

kit_kats_mom replied: Kristin, I don't know what to say. I wish there was something more I could do. Let Spencer know that we are all pulling for him to come through this and our family is keeping your family and his doctors in our thoughts.

DansMom replied: I don't know what to say, either, Kirsten. My heart breaks for you in hearing and dealing with this news. I will keep praying for Spencer.

grapfruit replied: I'm so sorry for you and your family. With your permission I'd like for my church to help pray for you and Spencer as well. We will all be praying for a miracle...

Sarah&Mackenzie replied: I am so sorry, continuted thoughts and prayers for you and your family.

b&bsmom replied: Kristin, I am so sorry, I had read your last post and how he was getting better, I was so happy for you guys, and now I am reading this and tears are filling my eyes. I pray for Spencer and your family everyday!!! I will continue to pray for a miracle, the doctors do not know what can happen, only God does, it is the time of year to believe in miracles and I am praying one of them happens for Spencer. Hang in there. ((((((BIG HUGS)))))))

mom21kid2dogs replied: Heartbreaking news, Kirsten! We will continue to pray for a miracle here!

ZandersMama replied:

sparkys2boys replied: i already posted but felt the need to again.Talking to someone would be really good for you hun, noone has the right things to say to you right now but having someone just sit and listen to you will help. Please try and stay strong and keep your faith in God talk to him and listen. Honestly God does not give us more then we can handle, miracles do happen each and every day and your little boy has shown you that already hun. He is here on earth with you and has fought many battles already, love him and spend time with him. Stay strong for Spencer and all of us will continue to pray for himas well as you for God to give you the strength to get thru this.

Kirstenmumof3 replied: I meet with my counsellor at the Cancer Clinic today, she was great, just listened. I'm in shock today, worn out all the tears. I don't think I can cry anymore. I asked about Radiation Therapy, as we are not familar with it. She called the radiologist and I got to see the machine they use. I can't Thank You all enough for your love and support! You all mean so much to me, THANK YOU!

3_call_me_mama replied: Hugs and prayers !!

A&A'smommy replied: Honey I wish I could say more than i'm sorry to hear this..... My P&PT'S are with you guys!!!!!