Need HUGE PRAYERS - and POSITIVE THOUGHTS

mckayleesmom wrote: A Little backround. My nephew Peyton Riley was born May 25th 2004...a few days after he was born I found out I was preggo with Russell. Shortly after he was born they noticed that he was extrememly slow...they questioned the doctors who ran test after test....trying to figure out why he is so slow....For a while they thought he was just taking his time or he could possibley be severely autistic. Here is an example of how slow he is and the things he can't do

*Peyton doesn't cry (sometimes he makes a face, but no sound with the crying face)
*Peyton doesn't look you directly in the eyes...(always looks down and sometimes he looks at his fingers as hes moving them)
*Peyton won't put any pressure on his legs, won't sit up, won't sit up while you hold him...he puts his head on your shoulder
*he can't hold up his own head and they are having a special carseat made for him so that he can still face backwards because he has no muscle strength to sit forward even though he is 30lbs
*Sometimes you can tickle him to make him laugh,,but he never continues to laugh or laughs on his own
*he never acknowledges when someone comes in the room...not even his mommy or daddy...You know as moms that your babys light up when you walk in a room...he doesn't
*never coos.....never makes a peep...you could almost forget he is there.

Peyton just doesn't do anything....a newborn baby is more active and could do more then him...thats how he is

Peyton is now a little over 1 years old and doesn't even have most abilities a newborn has

About 2 months ago the doctors found out he needed Glasses extremely bad because he was sooo nearsighted (I think its nearsighted) that he probably couldn't see anything and maybe that is why he refuses to put his legs down or look directly at people. They got him baby glasses with the extreme hope that this would help him a little and get him going.....I think that they really wanted this to be the needle in a haystack. Everyone claimed that they saw an improvement (I didn't say anything and either did my mother..but we didn't see any improvement),,,,but it was probably in their imagination because of the amount of hope they had..

Today my sister called my mom really upset and crying..They took him to a Neurologist and brain specialist and she wants to set up an MRI soon. She believes that he is severely retarted and could also have alot of brain damage either from when he was in the womb or during delivery (the cord was wrapped around his neck and my sister wasn't allowed to see him for a while because he kept forgetting to breath). Anyways...she pointed out alot of the things he does that leads her to suspect this..such as no eye contact...sitting in his own world...etc. She told my sister and bil that he probably doesn't even have the ability to destinguish who people are...mom, dad, sister,,,etc....Babys normally recognize their parents,,,but he probably just sees everyone as just another person. Also...when I was at my moms house..I was changing his diaper and my goodness..the baby looked like a ken doll...his package (sorry if tmi) isn't on the outside of his body...hes kind of a chubby bunny..so we all thought it was because of his rolls...you had to press on his tummy to get everything to come out to wip him....This we found out is probably not from his rolls and chubbyness, but it is in fact sometimes a sign and seen in mentally retarded children. They also told them that if Peyton has the condition she suspects he has, he probably will never walk and possibly not talk.

Now my sister is not stupid...she knew he had something...and even this was a possibility in her mind. She has always said that they will deal with it and they love him no matter what, but this is still a shock to have it said to you. Please pray for our family...Hopefully even if he has it,,we can bring him out of his little shell he is so stuck in.

mckayleesmom replied: This is Peyton and Russell

mckayleesmom replied: Notice he is just staring at his hands...thats all he does.

mysweetpeasWil&Wes replied: My sister's SIL's baby had similar symptoms. I reccomend a neurologist right away. Her son was not diagnosed as mentally retarded, it was a much worse condition, one I don't know the name of. And I don't want to go into detail because I am not a doctor. Please tell your sister to keep having him tested. Prayers for you and your family, Peyton, and especially your sister.

mckayleesmom replied: At first they just thought they had a really good natured baby,,,but they started noticeing more....the first thing that started all the testing was the fact that he had a wandering eye.

A&A'smommy replied: Oh my I can't amagine what she must be going through that would be SOOO diffiult and I think its every parents worst fear!!! I'm sending LOTS of prayers and positive thoughts!!!

Kaitlin'smom replied: that is so sad, he is cute I do hope that if this is what he has they can work with him and get out of the shell in some way. It must have been frustrating to not know whats wrong and once they do it will be all the questions, how and why. I will be thinking of him and your family

kayla's mama replied: I will be praying for your family. He looks like a sweet little boy.

kidsarecrazy replied: My thoughts are with you!!! Hoping for the best! Make sure he gets lots of hugs

mammag replied: Oh Brianne. This hit me hard for some reason..... I am in tears. I can't even imagine how hard this must be for your sister and all of you really. You all will definitely be in my thoughts and prayers.

Lots of hugs to the little guy!!!!!

3xsthefun replied: Your family will be in my thoughts and prayers! He is cute little boy!

luvbug00 replied: Oh my. He's such a beautyful baby. We'll send your sister and family lots of prayers.

Jamielou replied:
ME TOO Bless his heart I will be thinking of your family and praying for Peyton....I dont know how i would deal with something like this but i know i would love my child no matter what was wrong it just has to be so hard on your sister knowing he may not be able to do what other kids can....

ions_momma replied: That is so sad! He is suck a cutebaby! I will be sure to keep him and all the rest of your family in my prayers!

mom21kid2dogs replied: {{{ hugs}}} to all of your family. It's amazing how once you get a definite diagnosis you can make adjustments and deal. It's just such a shock in the beginning. I'll add them to my prayers. He looks like a doll baby in the picture.

mckayleesmom replied: Guys..you don't know how bad I felt when they came to my moms to drop the kids off for the weekend....Here I am with a new healthy son and they can't even get theirs to move or look them in the eyes. This was when Russell was 2 months...I just didn't brag about Russell in front of them....I felt like a jerk if I accidentally said something like..."russell has held his head up since he was born"....My mom called them to tell them Russell Rolled over...and that made me feel bad too. But my mom said that my sister would want to know and that she doesn't want anyone feeling sorry for Peyton.

Boys r us replied: Aww Brianne, I'm sorry! I hate to even use the word sorry though..b/c in some way that sounds as if I'm disregardinig the beautiful child that they do have..health problems or not, KWIM?
I truely believe that some of the most beautiful people in this world are people who have physical and/or mental handicaps. In a way, they stay innocent from this tainted world we live in.

When I had Tanner, my cousin and his wife had a baby 4 months after Tan was born.
His name is Cameron..he was always a little "off" and different, even as a newborn, he always seemed startled. I can sympathize with your position in having a healthy child the same age. As our kids have grown and now are 9 yrs old..the differences are unreal and brutally honest as they were unable to go unoticed..Cameron didn't walk until he was over 3 yrs old, while Tanner was walking at 9 mnths...and on and on..I always felts so badly having Tan around Cameron b/c it almost felt as though I was being haughty in some way just b/c I knew in my heart how painful it must be to see our kids, the same age, with years worth of differences between them. They had test after test done on cameron and I don't think they are still sure what is wrong with him. He's in a special education class at school and it is known that he is mildly retarded but there are severe neurological problems as well, he shakes constantly, just quivers and can hardly function because of it.

Anyhow, I didn't mean to hijack your post, just relating with you!! Your little nephew and your family will be in my every prayer!!

jcc64 replied: Wow, Brianne- that's really overwhelming.
I would agree that the best thing in this situation is knowledge. A girl I work with has a little girl with an unspecific kind of neurological delay- but they knew from the beginning that something just wasn't "right." She has sought and received all sorts of services and therapy paid for by social services (which would be taken over by the school district when the chld reaches age3, I believe). Although the child is obviously very delayed, she just learned to walk recently (she is 3 1/2), and is making progress. It's critical to get the diagnosis and appropriate therapy as early as possible.
My heart goes out to your sister and your family.

JessC replied: oh poor baby! that is the saddest thing, your family will be in my thoughts and prayers.

stanleygirl replied:

Me too

My heart goes out to you and your family. You will all be in my thoughts and prayers.

amymom replied: Your family are in my prayers.
I beleive this is called Early Intervention.
Do be sure they get him into Early Intervention services , they will assign OT's & PT's (Occupational & physical Therapist) to work with him and that will hopefully help. It is amazing what a good Therapist can accomplish when the doctors think nothing can help.

amynicole21 replied: My heart is breaking for your sister, Brianne. It must be so devestating to know the challenges someone you love so much will have to face. Little Peyton and his parents are in my thoughts.

Emeraldsmom replied: Oh, I am so sorry. I will be saying big prayers for him.

mckayleesmom replied: They already have a therapist that comes to see him twice a week to work with him....its just figuring out what is wrong that is still the problem. She helps him with his muscles. He has no muscle tone and she tries to strengthen them. He is doing better with his neck,,but not much. He will kick his legs if he is laying down on his back,,,but will not put any pressure on them whatsoever.

redchief replied: P&PTs to you, your family and the challenges you face. God Bless!

ediep replied: Oh Brianne, sending tons of P&PT for you and your family.

coasterqueen replied: Oh gosh! My prayers are definitely with you and your family.

gr33n3y3z replied: Sending Prayers for you and your family and little Peyton.

tammyhopkins replied: Our prayers are with you and your family. Your sister sounds like a tough cookie and by the sounds of it loves that baby to death.

Keep your hopes up anything could happen.

SOUTHERN MOMMY replied: Oh Brianne i am so sorry i can't imagine what you all are going through most of all the mom and dad my thoughts and prayers are with you all keep us posted