I need some healthy vibes everyone - my life is a mess

ZandersMama wrote: I dont even know where to start, I was waiting to post until I know more but yesterday just has my head a mess.

Zavier sees a team of specialists from the IWK every 6 months, they specialize in preemie issues. I was so proud going over there yesterday, he has been doing great. He JUST turned 2 and recognizes every letter in the alphabet, will get me a specific flash card if I ask, just amazing. So we get over there, and they were impressed, in fact the doc said hes never seen anything like it. However he is worried about other behaviors hes showing and is referring him to mental health, he thinks if hes not autistic he has something else going on. But he seems to be pushing autism. It kills me, he seemed to be doing so well. But I guess im not a specialist so i dont know what to look for.

On another note, I have been getting horrible stomach pains for a few months, it comes and goes but when it hits I am doubled over in pain. So I was sent for an ultrasound, the woman doing the ultrasound went and got a doc to look at the pictures, ultrasound was redone. The doctor and tech were both speaking a diff launguage when speaking to eachother, neither of them are from this country, I didnt understand a word anyway. THen i was told to leave. I get a call that im booked with a surgeon for November and things will be explained at that appointment.

My head is just so full right now. Zander is doing great though. I guess at least one of us is.

Crystalina replied:
What?!! How totally unprofessional and RUDE! They should speak English when speaking in front of you.
I'm sorry your having the pains and I hope it's nothing serious. They didn't tell you anything?

KUP on Zavier.

cameragirl21 replied: Does Zavier look you in the eye? Does he talk to you? Does he interact with his brother? If he does, he's not likely to be autistic.
As for your health, I hope the surgery goes well and that everything is ok.

stella6979 replied:
Ugh...I absolutely agree! You have every right to know what's going on with your own body and the Doctors should be able to explain it to you, in English. How incredibly rude!!!
I really hope it's nothing serious for either of you.
Be sure and keep us posted.

mckayleesmom replied: Try not to worry...they might be wrong about Zavier...and if they are correct then he is probably high functioning. Try not to worry until there is something definantly to worry about.

That is very unprofessional to just book you for a surgery when you don't even know what the problem is.

lisar replied: I cant believe they didnt tell you anything. Thats wrong.

Calimama replied: I can't believe they didn't tell you anything! That would drive me nuts! I hope whatever the problem is, it's an easy fix. KUP!

MoonMama replied: WHAT?! How can they tell you nothing at all?

I'm sorry your having such a rough time sweetie. Hang in there and feel free to PM me if you ever need to talk, cry, or vent.

MommyToAshley replied: Wow, you've got a lot on your plate right now. That's a lot to deal with all at once.

You have done a wonderful job with Zavier and he has grown and developed over the years. He seems to know a lot for his age, and you should be very proud. I know the word "autism" must be scary, but it is a very broad specturm. I have a freind who's son has some mannerisms that concerned the doctor. The doctors diagnosed him with a condition that is on the autism spectrum, but I never would have noticed the mannerisms or thought of him as autistic. He seemed normal in every way to me. But, the therapy has helped his mom and teachers to better deal with some of the social concerns she was having. So, I think it is good that the doctors are looking into all possibilties now, as the earlier the intervention, the better. I don't like labels though, because they can be scary. I am sure that there are more of us that are considered functioning adults that may have had a label placed on us as kids had the medical society as a whole known back then what they know now. Hang in there and try not to worry. I know that is harder said than done though.

I'm sorry to hear about your stomach pains. I think the doctors were very unprofessional, and as a patient you have rights. If I were you, I would call and schedule a consultation and demand to know the results of the tests. I can't imagine being scheduled for surgery and not even knowing what for? That's just crazy. If your doctors aren't willing to be more forthcoming in your healthcare, then I would seek out another doctor.

We're here if you want to talk, and I will be thinking about you.
Please keep us posted on how both of you are doing.

A&A'smommy replied: OH honey i'm sorry to hear that you have so much going on right now, I wouldn't a whole lot about Zavier if he does have it no one else may even be able to notice and just remember how smart autistic children are

As for your problem if I was you I would find ANOTHER dr tell them what happened and tell them you want to know what the issue is you have a RIGHT to know what going on!!

KUP on everything I will be praying for you and your boys!!

Danalana replied: Your stomach issus sound like what a friend of mine (and my mother) had. I was the gall bladder for both and both had to be removed....relatively simple surgery. Of course, I have no idea that it really is your problem....so sorry they didn't tell you!
Like the others said, don't worry about Zavier until you know more.

ZandersMama replied:
thats whats ticking me off most, noone will tell me anything. the appointment with the surgeon is a consultation to tell me whats wrong and what they are going to do
i just hate that i have to wait till an appointment next month to find out.

thanks for all the kind words, i know zavier is probably okay its just alot to deal with at once. whatever the problem is ill deal with it, its just hard not to worry.

Bamamom replied: Nothing to add that others haven't said I just wanted to let you know I'll be praying for you!

jem0622 replied: You should not have to wait until a pre-op consult to know what is wrong with you! That is not okay!

You are a super Mom. I wouldn't worry about your son if he is doing that well with the alphabet.

Lots of HUGS and PT for your health!

my2monkeyboys replied: I agree with everyone here -- lots of hugs and PTs and prayers!!!
You're a great mom, no matter what!!!

redchief replied: I wouldn't worry too much about Zavier until you are given something to truly worry over. Keep the appointment and keep us posted on what's going on!

As far as the radiologist is concerned their behavior is all too common. If I were you I'd speak with whomever made the radiology appointment and find out what's going on so that you're better prepared when you meet the surgeon. And remember, the surgeon doesn't tell you what he's going to do - he suggests a course of action and you decide whether or not you will follow the suggestion. Sometimes doctors get this god syndrome and need to be put in their places.

CantWait replied:
Ditto to what Ed said.

Try not to worry about Zavier, I'm sure he'll be fine. He seems like a very healthy boy despite his early entry to the world.

As for you, I'm praying it's nothing serious and an easy fix.

punkeemunkee'smom replied: I will keep you all in my prayers!