How quickly life can change.. - for the worse.
sparkys2boys wrote: OK, so at this moment I am sick with worry. My Dh has been having dizzy spells, headaches, having spots of facial hair that just stop growing,not sleeping, just plain not feeling good. We went to our doctor a year ago on this and he then sent us to a throat, ear, nose specialtist, who then ordered a catscan which was done about 7 months ago, it came back clear but still having all the problems, then sent him fot a MRI way back in Oct of last year, he finally got the reports back and called DH in today, the MRI shows that he has a cyst on the base of his brain.The MRI specialist said on the report that it may be more then that but cannot be sure that it is out of his field. Now DH is being refered to a neurosuregon, which could take up to three months to see. OMG.. three months, I am sick with worry that this is more then a cyst, in three months he could.. well, it could be so much worse.I'm sitting here trying not to lose it in front of the kids, DH has gone back to work with the attitude.. we'll just have to take it as it comes, but I know that he was crying when he walked in the door, it has to be scaring him to death right now.. I'm so scared to lose him.. sorry to go on but, I can't even think stright right now. Please pray for us that it is nothing serious.
jcc64 replied: Ok, first,  I know it's hard not to flip out and entertain all kinds of horrible thoughts. It's human nature, but human nature isn't always rational- so try not to let your fears paralyze you- they are just fears at this point.
My question to you is- why did it take 3 months to get the results of an MRI? Are you in the states? Because I've never heard of ANY test taking that long. My son had a brain MRI- we had the results in a few days- you can get them right then and there in an emergency situation. I'm not sure you should be putting alot of faith in the care you're receiving up to this point. I would seek out a second opinion asap. It's completely unnecessary and possibly dangerous to walk around without the essential information you need to make an informed decison about your dh's care. Having watched many of my loved ones get pushed around, abused, patronized, etc, by a sometimes inhumane healthcare system, I've learned that you really have to be an aggressive advocate for yourself or your loved ones. I wouldn't accept that diagnosis, or more accurately, lack of one. Find someone else to care for him.
Best of luck and try not to freak out. I'm sure it's going to turn out ok in the end.
PrairieMom replied: OMG. I can't even imagine what you guys are going through. How sad that you have to wait so long to be seen by someone, and it is completely crazy that you had to wait this long for MRI results. I hope things move quickly for you guys, and that things turn out to be okay.
TheOaf66 replied: in an emergency situation like that, have your regular Dr. make a referral and call that specialist himself and they should move much faster, don't wait around to get a random appointment. I hope it turns out to be nothing.
lisar replied: I am so sorry. I hope it doesnt take that long to see the specialist. I couldnt even imagine what you are going thru.
mom2my2cuties replied: OMG! I am so sorry to hear about this  I can't begin to imagine how you must be feeling. I think Jeanne said it best, you really need to seek out a second opinion. I know you are in Cananda and things are a little different. Is there the possibility of seeing a doctor in the US to get things done a little faster?????
sparkys2boys replied: To answer a few of the questions.. The MRI results took so long because there is noone here at our hospital that can read them, they had to be sent away and then then sent back etc.. our hospital and doctors are lacking bigtime. For the next appt. we have to be sent off the island to go and see someone away also. Noone here can do this. I just called our doctor and he said that he will call and try to get us in faster but his hands are pretty much tied, as for seeing someone else for a second opinion.. this is it.. there is noone else to call and it would all be the same thing.. thanks though you guys.
cameragirl21 replied: i'm so sorry to hear that, Sherri, i know it sounds lame and corny but try to think positive.
take care.
Kaitlin'smom replied: first I agree 3 months is WAY to long for results, and then to wait for an appointment. Take charge and get him in sooner. Honestly I know its hard to to think negitive but really try, wait till you have all the info and even then I would get another opinion. I hope it turns out to be nothing and you find better care for DH cause his current ones just are not doing it.
Maddie&EthansMom replied: I can't imagine.  You are definitely in my prayers.
C&K*s Mommie replied: You will be in my thoughts.
CantWait replied: I'm so sorry Sherri. Many prayers that everything is alright. My Aunt right now is going through the same thing, she's got a cyst somewhere within her facial region right now and is currently going through treatment to shrink it.
sparkys2boys replied:
Marie, if you dom't mind me asking.. where is this taking place at? She's is not in the maratimes right? We are going to have to go to either Moncton or Halifax to see the suregon. How long did it take for your aunt to get treatment and does she have a cyst or a tumor? Sorry for all the questions, I just have a million things running through my mind right now.
Sarah&Mackenzie replied: I will keep you both in my thoughts and prayers
Calimama replied: oh sweetie I'm so sorry! PM me if you want to chat.
Boo&BugsMom replied: If it makes you feel any better, if they know for sure it is a cyst, from what my doctor's have told me a cyst CAN NOT just turn into cancer. A cyst is a cyst and stays that way. I know that is usually the first thing people think about when they hear the word cyst or tumor. I hope it's nothing serious and that they will be able to see him sooner. Do what Troy suggested...he works for a hospital.
holley79 replied: Many thoughts a prayers with you and Dh.
My mom has a cyst in her pineal gland. They were not going to get her in to see a Dr for about 3-6 months. My mom contacted her insurance company who got her a mediator. Maybe you can contact your insurance company and see if they have one. I think most or all insurance companies do and see if they can get him in soon.
sparkys2boys replied: Thanks for everything you guys. I think that we are just going to have to wait until we get a call to go, not much more we can do at this point.
3xsthefun replied: I'm so sorry. You will be in my thoughts.
CantWait replied:
No my Aunt is from Timmons, ON, but is getting treatment in Toronto right now and staying with my grandma (her step mom). I believe it's a tumor and she's actually had it for years, but because of the growth and the fact that's it's grown to much and giving her more problems now, she has decided to get treatment for it. She found out a couple weeks before Christmas how big it has gotten and was told that she can either stay in T.O. now, however she choose to go home for Christmas and come back right after. She just got back this week and started treatment. I believe she's sceduled to be there at least 6 weeks.
redplaydoh replied: I'm sending some patient and calming vibes your way. I think if your doctor was suspicious that it was worse he'd be on the horn to get your DH in right away. Even so, you and him have every right to be worried... who wouldn't be?
gr33n3y3z replied: My Boss had the samething just last year and all the syptoms were the same and his hands would shake and he would almost pass out at work
He went and had it drained and he has been fine ever since they couldnt remove it bc of the location so they put a shunt of some sort in the cyst so it drains on its own.
Everything will be ok hun hang in there
Prayers for you and your hubby and family
JadensMama05 replied: Oh wow. I cannot imagine how you are feeling. I am so so sorry. It seems like everyone with some kind of experience here is pretty confident and knows what they are talking about so I'm sure everything will turn out fine. There seems to be things that can be done, ya know? Millions of s and super positive thoughts, as well as soothing music vibes  coming your way!
luvmykids replied: I have no idea what you must be thinking and feeling so I'll just send amd prayers for both of you.
MyBabeMaddie replied: Omg I am so sorry to hear that. Try to stay positive - I know easier said than done - Your family will be in my prayers. Stay strong!
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