BackFired

Kirstenmumof3 wrote: I'm affraid to say that now what happened yesterday has caused a lot of problems. The nurse that Spencer has today, won't talk to me. The other nurses won't even look at me. When the doctors came to do there rounds the doctor wouldn't even give me the time of day. He just came in, said his peice and left. I had questions and concerns, but they were not addressed. I'm so angry right now that I'm crying and sick to my stomach. I want to go home, I just want to get out of this hospital!

Oh and I bathed Spencer today and the only time he cried was when I was cleaning his bum. I stopped and asked the nurse for a dose of the Hydromorphone and she gave it too him. My poor guy!

mckayleesmom replied: Im sorry Kirsten....sounds like a really unprofessional hospital.

coasterqueen replied: I'm so sorry Kirsten. I still think you did the right thing.

Sarah&Mackenzie replied: Is there no other children's hospital you can transfer too?? You shouldn't have to be going through this, you have enough to worry about!!!

Cece00 replied: I would look into transferring hospitals and complaining about ALL staff you have come into contact with that have been unhelpful and rude. Their behavior has been unacceptable IMO (and I have LOTS of family & friends, even my step-MIL who are nurses), esp with dealing with a CHILD.

I am hoping things get better for ya'll.

Kirstenmumof3 replied: Thanks everyone, but unfortunatley this is the only hospital in Ontario that deals with bone marrow transplants. If I could fly him home today I would. But the hospital in Thunder Bay is not equipped to handle such a sick child.

luvmykids replied: I'm sorry it got even more rough for you.

jem0622 replied: You need to file a complaint with the administration of the hospital. It is hard when we have to put our foot down for those we love b/c we are not satisfied with their care, and we are the bad people for it. HUGS to you.

1lilpeanut2love replied: I am so sorry to hear that! Why do people have to be the way they are!!

booey2 replied: Oh, I am so sorry they are treating you so poorly. That hospital is usually one of the best. Have you tried speaking to anyone else there in authority or social services? I am not sure if they can help but they may give you some suggestions to try and smooth things over.

amymom replied: I agree that social services or Patient advocates should be able to help.

Good Luck to you. Prayers that this stress will be relieved so you can concentrate only on Spencer getting well!!!!

MamaJAM replied: Oh no. They definately need a kick in the butt at that hospital. Is there anyone 'higher up' you can talk to? Maybe someone from the main administration office? I hope these professionals get over their little hissy-fit quickly and can focus more on what your sweet little guy needs.

punkeemunkee'smom replied: Kirsten I am so sorry! I would try the patient advocate office! They deal with these type of things on a daily basis and when it is all said and done I would complain about all of this! You have more on your plate right now and they should understand that!!!

C&K*s Mommie replied: I hope you can continue to be strong for Spencer, but also take that same strength I admire and use it to go to the top and make your voice heard that this is unacceptable!

kimberley replied: i am shocked and saddened to hear this. sick kids hosp is supposed to be one of the best in the country. has dh spoken to anyone yet? they cannot shut you out of your son's treatment like that. praying things get better soon.

ashtonsmama replied: Is there any other hospital you can go to? I still don't quite understand the whole situation, but I am so sorry to hear about all the trouble you've been having. Sounds like an awful place...and I hope it all resolves itself soon...I'll be praying for you and you family...keep us updated.

gr33n3y3z replied: Kirsten you did the right thing hon
Those Dr's and Nurses should be kicked in the @$$
When you get ready to leave that place I would bring down the roof they have no business treating you like that they need a reality check and put back into their places They dont want me come up there hmmmmm
Hang in there hon

PrairieMom replied:
No doubt. If the nursing supervisor won't take care of things there is some higher up to complain to. That kind of care is completely uncalled for, and un professional. i would keep complaining until somone starts listening. you are within your rights.

A&A'smommy replied: Oh Kirsten I'm SO sorry they shouldn't be acting like that it is VERY unprofessional and VERY immature!!! Poor Spencer baby!!

jcc64 replied: You don't need them to be your friend, you only need them to do the right thing by Spencer. It's too bad that they aren't willing or able to acknowledge the enormous stress that you've been under, and cut you some slack, but be that as it may, you still need to do right by your child. Which you did.
In my experience, the better the hospital, the less accomodating the staff is. Not sure why. I agree that it's time to find the patient advocate. Big hugs, Kirstin.

fashionmumofboys replied: I'm so sorry that they are treating you like this. This hospital like you already said is one of the best in Ontario and I have never heard such horrid stories like this.

I hope things start to look up for you real soon.

Edward's Mommy replied: You did the right thing for you son! And don't let these doctor's and nurses let you think you did! YOU ARE A GREAT MOM!!! And you did what you had to do to help ease your child's pain. You did what we all would have done! I would talk to the board about how the hospital is treating you and your son and if they don't do anything about it, I would threaten with a lawsuit and/or see if you can change hospitals. I'm so sorry that these doctors/nurses are treating their patients this way. It makes me so angry for you! You did the right thing for your son and don't think you were wrong!! I hope everything begins to improve for Spencer and you will both be out of there soon!! Prayer's and 's

I was talking to my grandmother about this and she told me to tell you about St. Jude's Hospital. I don't know if you've been there already. St. Jude Children's Research Hospital, my dad donates to them. Here's a link if you'd like to look at them for yourself. http://www.stjude.org/ I really hope this helps you!

MommyToAshley replied: After seeing this post, I went and found your other post about how they treated Spencer. I am so mad. How could they treat our sweet spencer this way?

I do agree with Jeanne in that it seems like the better doctors (better from a medical perspective) tend to distance themselves from the patients and the emotional aspect of their jobs. But, I always thought that the nurses filled that void. It seems as though the nursing shortage is either affecting the nurses' judgement, or they are just hiring any old nurse to fill the vacancy.

Kirsten, you did the right thing. You have every right to ask for another nurse, to see that Spencer has the best medical care and is not caused any additional harm (physcial or emotional). I would definitely talk to a patient advocate. You need to have your questions and concerns addressed and be kept informed of Spencer's condition.

I hope you get this resolved quickly and you are able to get a nurse that has a little compassion for what you and Spencer have been through.

Please keep us posted. Many continued prayers

holley79 replied: I am so sorry Kirsten.

mummy2girls replied: oh no! I am so sorry! that really sucks! i always thought that hospital to be the best in canada for kids... Too bad you cant transfer to The stollery here in Edmonton ...as im quite sure they do bone marrow! The hospital your in is #1 in canada and the stollery here in edmonton is #2. I am so sorry! I still cant get over how they are treating you!

I agree with jeanne as well! That usaually is what the nurses are for to fill that void the doctors sometimes tend to stray away from!

You have every right to demand what nurse can or cannot care for spencer! You need to know answers to yoru concerns! You as a mom have all the right and for them to just do that to you is so uncalled for!

(((HUGS))))

Kirstenmumof3 replied: I spoke with my social worker today and told her everything that happened. She suggested that maybe she be the on to talk to the Weekday Charge Nurse, just so that there is a formal complaint. I explained to her that I feel very intimidated by this nurse and would not feel comfortable talking to her. If I don't get results, I have already called the Patient Representatives office about Spencer bum and I'm not affraid to call them now about this nurse and how Spencer is being treated!

mummy2girls replied:
wtg mom!!!!!!!!!!! your doing what is right for your son!!!!!!!!!!!!!!!!!! ill be thinking about you and spencer!

kayla's mama replied: You did the right thing.

1lilpeanut2love replied: You go Momma!! I totally agree with what you did. IMO you did the right thing!! I hope things get better soon!!

PrairieMom replied:
It totally sucks that you have to go through all this, but way to go being brave enough to do what needs done!

punkeemunkee'smom replied:
WTG mom!!! Keep talking until someone listens! We are praying for Spencer and you! Hang in there Kirsten-you did the right thing for your son!

mommymonster replied: You poor girl! Just stand your ground, the staff will just have to get over it! It sounds like they are in the wrong anyhow by not addressing your concerns for your child's well being---that icludes them being sensitive to him and how he feels!

CantWait replied: I'm so sorry. I can't believe how unprofessional and immature really that they're being. You did the right thing by speaking up. Unfortunetly it's not getting the results it should have.

~~*Missi*~~ replied: i really wish there was something i could do for you. I can't believe that a nurse a doctor a hospital as a whole are treating you this way. I would honeslty say thou it can't get any worse. Say something like If there is a problem because I don't want someone telling my boy he doesn't know pain or cold then SPEAK otherwise treat me like a mother who is stressed and at her wits end. Its not like you don't have anything to worry about!

i am so so sorry i jsut wish i could give you a big bear hug sorry

luvmykids replied: I know you feel like you're at their mercy with Spencer being so sick, but YOU are the CLIENT. It is their JOB to do what is best for Spencer and as his mom YOU have a say in that! Don't let them intimidate you, I know it's easier said than done but I know you've got it in you!

My2Beauties replied: I just read your other post now I saw this one, I am so sorry! They have no right to treat you that way hon. I would contact a patient advocate as well. You have every right to complain in this situation. They are acting like childish people.