Another Vent, I'm Just so Fed Up!

Kirstenmumof3 wrote: Today Spencer isn't eating, so all day they have been threatening him with the feeding tube. Everytime the tube is mentioned he gives in and eats. I'm sorry but, if they are going to put the tube in just do it! This has turned into a game, for the last 3 days, I've had to listen to them tell him that they will put the tube, only to have them back off once they have scared him into eating. I don't know, but I think forcing or scaring a child into eating could be harmful pyscholigically. The machine is in his room, the tube and tape are ready and yet they won't put it in. Am I happy that he does eat, of course I am, but he shouldn't be threatened into eating. It finally got to be too much for me, I told his nurse not to threaten him with the tube again and then I walked out of the hospital. I don't even want to go back, I'm so angry. I just don't know what to do and the nurses just don't seem to want to listen to me!

amymom replied: Oh Kirsten, I am sorry. I wish it was easier for you and Spencer. Know that you are all in our prayers.

Edward's Mommy replied: I can't believe these people! That's no way to treat a sick child or any child or any reason. I'm glad you said something. If they don't listen to you, you should complain. I'm so sorry they're treating your son like this. My prayers are with you and Spencer.

gr33n3y3z replied: they should put the tube in bc once its in he will hate it and start eating on his own
Its not fun having them put the tube in or taking it out

I feel the way you do either put it in or shut up about it

boyohboyohboy replied: Don't let the nurses push you around, you are in charge, you are his mother. Just tell them how you want things done, and it will be done. Ask to speak to the nursing supervisor and demand that the threat not be made again if that how you feel.
I know that sometimes nurses get caught up in the medical aspect and forget about the human aspect, I know because I am one.
I keep you and spencer in my prayers.

I hope this is all resolved soon.

C&K*s Mommie replied: My thoughts are what everyone has said here, before me. Just wanted to send hugs your way for comfort.

mckayleesmom replied: Kirsten.....Could Spencer possibly be afraid of going home for some reason? He has had alot of things come up and maybe hes afraid one will come up when you are already home. Maybe you can ask him and reaasure him that is ok to go home....he might just be scared.

MamaJAM replied: Poor little guy....the last thing he needs is some dumb nurse threatening him. (Not to mention that you've had enough headaches to deal with without this crap going on.)

luvmykids replied: You're so close to being able to go home, I wish you could get over the hump painlessly.

Kirstenmumof3 replied: Well they put the tube in while I was gone this afternoon. I have one very sad little boy. He ordered cheese pizza tonight for dinner and they brought up peperoni and he started to cry. He wouldn't eat anything else. I'm glad that they finally just put the tube in. I'm glad that the threat is gone. I'm hoping now he will start to eat and take his medications orally.

As for reasons why he wouldn't want to go home, I can understand that, but he hasn't said anything to me. I'm affraid of what to do when we go home to Thunder Bay. I know that we have a clinic that is a satelitte for Sick Kids and that he will be followed by them. He also has a pediatrician that will need to see him more frequently than he was. I know that all of this has been so tramatic for him. That's why I had asked for a psych consult for him, but they really don't seem to be of much help!

holley79 replied: I wish there were something I could do Kirsten. Hopefully he will eat without the tube.

kimberley replied: i am sorry it has resorted to the tube but glad the "games" are over. keep trying to reach him to find out what he may be worried about. hang in there Kirsten. i pray you will be home soon.

redchief replied: ITA with Kimberley and the others on trying to find out if there are other reasons he's not eating. His little body has been through so much; it could be he's just bloody well tired of it all, too. As far as going home goes, I know how scary that thought is, but all in all I think getting as close to back to normal as possible, as soon as possible, will be best. I think you should probably keep trying on the physch end too. It's real possible he's got a lot of inner emotional turmoil he won't or can't share with you. Hang in there Kirsten! You and Spencer remain in our prayers.

A&A'smommy replied: I'm sorry dear but that is WRONG they should LISTEN to you, after all you ARE his mother!!!

My3LilMonkeys replied:

Elissa,MyLove replied: Oh, Kirsten, i'm so sorry! 's to you & Spencer!